Massachusetts Network of Information Providers Fact Sheet
Disability/Illness Description: Arthrogryposis (Arthrogryposis Multiplex Congenita) is a term describing the presence of a muscle disorder that causes multiple joint contractures at birth. A contracture is a limitation in the range of motion of a joint.
Associations/Groups:
AVENUES
P.O. Box 5093
Sonora, CA 95370
Phone: 209-532-2750
e-mail: help@sonnet.com
Web site:
http://www.sonnet.com
Avenues has a directory of therapists, list of support groups and list of hospitals.
Other Information: Causes for limitation of joint movement before birth:
- Muscles do not develop properly (atrophy)
- There is insufficient room in the uterus for normal movement
- Central nervous system and spinal cord are malformed
- Tendons, bones, joints or joint linings may develop abnormally
In most cases, arthrogryposis is not a genetic condition and does not occur more than once in a family. Research has shown that anything that prevents joint movement before birth can result in joint contractures. The joint itself may be normal. However, when a joint is not moved for a period, extra connective tissue tends to grow around it, fixing it in position. Lack of joint movement also means that tendons connecting to the joint are not stretched to their normal length; short tendons, in turn, make normal joint movement difficult. (This same kind of problem can develop after birth in joints that are immobilized for long periods of time in casts.)
Treatment:
- Physical Therapy
- Casting
- Surgery
There is a wide variation in the degree to which muscles and joints are affected in those with arthrogryposis. In some cases, it may be accompanied by other conditions, such as central nervous system disorders. It is non-progressive; it does not worsen with age. With physical therapy and other available treatments, substantial improvement in function is usually possible. Most people with arthrogryposis are of normal intelligence and are able to lead productive, independent lives as adults.
This information was provided by the Spokane Shriners Hospital.
Fact Sheet last updated on: 01/15/2008
Disclaimer: The Massachusetts Network of Information Providers for People with Disabilities (MNIP) is pleased to be able to provide this information. Please Note: Information in this fact sheet is provided as a service. It is not comprehensive, nor does it take the place of legal advice. The user is encouraged to check references for resources provided, and to keep in mind that the names of providers or additional sources of further information are intended as referrals only; no endorsement by MNIP or this agency should be inferred.
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